Tuesday, June 8, 2010

Living happily ever after

[caption id="attachment_2623" align="alignright" width="300" caption="Kip and Patrick visit in 2005."][/caption]

Yesterday upon arriving home, I found a package with MY name on it containing Aveda products (those delicious shampoos and face products).  PLUS some lovely 8x10 photos of Kip, Patrick, Kirk, Agogo & Moffat.  Oh yeah, and Oprah (from when she was in NYC for a benefit walk).  I have hung some of the photos in Ellie's room so that she can look at her uncles from her bed.  Kip has a Yankees baseball cap on in some of the photos and Ellie cannot for the life of her tell who the heck baby fire is in the picture.  It's been kind of a fun game all day.  Who the heck is THAT guy.  And Ellie will say, I have no idea!  She is however, able to identify Patrick Kyle with his sunglasses.  Now all day long I just keep smelling the wonderful shampoo on my hair that Kip and Patrick sent.  And I feel rich rich rich.  I feel like saying to everyone I run into, "Yes my toe still hurts, but gee doesn't my hair smell terrific!"  It's quite a nice distraction. 

[caption id="attachment_2622" align="alignleft" width="300" caption="Kip and Patrick on a visit in 2005."][/caption]

Sodium is back in the normal range!!  We were at 145 this morning (135-145 normal).  We realized yesterday morning that some of the meds she was on were from back when we were worried she was diabetes insipidus (dropping her water), so it was a med telling her body to hold onto her salt I think).  When I mentioned it to the endocrinologist, she was shocked that we were still giving her that med.  Then the afternoon nurse noticed that the supplement we were giving Ellie had electrolytes including salt in it.  So we eliminated those two which may have helped with sodium.  How refreshing to have 2 simple easy things to do that seemed to have caused an immediate result.  

This morning our great friend, Lainie, offered to take Ben to the fire station with her children.  Well when she arrived, Ben was in the midst of eating his breakfast and just could not tear himself away from the wonderful cinnamon swirl toast I had prepared for him.  (Yes, I am quite the morning chef.)  So Lainie convinced her children to stay at our house for a playdate.  Her son, Gavin, was enthralled with our new tiny turtle.  He explained that he will be getting a turtle for his birthday (I am not so sure his mom agreed with that prediction.)  I mean wow, to cancel a trip to the fire station was way above and beyond.  THEN she asked me if she could start some laundry or do some cleaning for me if the kids were all occupied.  I felt like she deserved a raise.  Before I left Ben asked, "Before you limp outta here, can you give me another snuggle?" 

We had a mnft (marvelous nice fantastic terriffic) visit with Jennifer at lunch time.  Then Brittany came at just the perfect time this afternoon, right when Ben was ready to leave Tyler's Place (sibling care).  She was also around when Ellie went down for an MRI so she was able to stay in the room with Ben.  Finally she was around and able to stay in the room with Ellie while Ben and I went to get a yummy family meal before they ran out. 

So yes we have had an MRI just to rule out anything for the leaning to the left.  Rehabilitation seems to think that her left side is just feeling weaker than her right side.  But it doesn't explain the sudden onset of the leany to the left.  I am hoping that the MRI will have an actual arrow that points to what is causing the leaning and it will be something easily fixable.  And then we'll all live happily ever after.

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