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[caption id="attachment_2704" align="alignright" width="300" caption="The first time Ellie learned how to walk..."][/caption]

Yesterday late afternoon we arrived home from the hospital.  Ellie has moments now where she is feeling better, more like her usual self.  Then she has moments when she says, "I wish I had my energy back."  And times when she just feels like crying (that may be the steroids talking or it may be exhaustion or maybe a bit of both.)

We have her set up in bed working on crayons, we are on the final box of crayons shipped from Virginia, if you can believe it.  Ellie fell out of bed earlier today and I race/hobbled upstairs to retrieve her as she was stuck between the heater and the wall.  When she starts losing her stamina from being awake, is when she has the most difficulty with standing/sitting/talking/walking.  She also had a major accident in her room this afternoon, all the way across the floor.  I don't know how she did actually, she may have won some kind of female long distance contest with her performance. 

[caption id="attachment_2705" align="alignleft" width="300" caption="she was a bit easier to pick up."][/caption]

On Monday, we have PT/OT/nurse coming over to start our homecare regiment.  Fortunately, we had much much better visit with the nurse who came last time.  She stopped by today just to check on Ellie, take her temp (94 degrees, on this balmy Friday) and blood pressure and check her hospital papers.  Also a different nurse will be coming on Monday, so we will have the opportunity to "shop around".  

A couple more thank yous...A great big huge thanks to Nancy and Gene (aka Grandma and Grandpa) for ALL of their help over the last week--grocery shopping, vacuuming, laundering, doing hospital time, obtaining food, fixing stuff, wheelchairing me around, carrying items up and down the stairs, reading, etc. etc.  For being oh so willing to help in any way that we asked, without even rolling their eyes or giving us any attitude.  They drove a total of over 12 hours to assist us, even though Nancy is having shoulder surgery on Friday (hey that's today I just realized!)  AND a yummy thanks to Aunt Suzanne who sent the best darn packaged cookies I have ever ever tasted in my life (and the baby completely agrees with my assessment!)  And an entertaining thanks to Karly and Valentine for taking Ben and I to the movie and lunch yesterday.   And an Ellie thanks for Brittany's help with hospital bathing and for Cynthia's attempt at Ellie time this morning (Ellie fell asleep instead.)