A crayola miracle...

[caption id="attachment_2631" align="alignleft" width="300" caption="Ellie, Ben, and baby Tabitha"][/caption]

The MRI from yesterday did not show anything that would indicate why Ellie is suddenly leaning to the left.  So the two viable hypothesis we have are that the left side is just weaker than the right side OR that she might need more steroids to stimulate her CNS (central nervous system).  Thom and I were feeling like since we have explored every possible option as to what else the leaning could be through neurology, endocrinology, MRI, neurosurgery, that going ahead and taking her home is our best option.  There she will feel more motivated to move around and get back her strength. 

Speaking of MRI.  Before yesterday's MRI, Ellie kept talking about how she really really wanted to get back to the room to peel more crayons.  Because of my pregnancy, they will not allow me to go into the MRI room with Ellie.  From numerous MRIs, it seems like she has a lot of friends in that department, so I am never too worried when she goes in by herself (ok a little bit, but I know she is surrounded by friends).  Plus a quick brain MRI takes approximately 2 minutes.  When Ellie was wheeled out of the MRI room, she was laying on the bed, holding 2 sets of crayons in her hands.  I did not realize that MRIs now produce crayons, it's a medical miracle!  Ellie was much calmer just having those crayons in her hands and thoroughly looking forward to putting them with her other crayons. 

[caption id="attachment_2630" align="alignleft" width="300" caption="Super happy Ben"][/caption]

Sodium has been rising a bit, we were at 147 (up from 145, which is in the normal range 135-145) this morning.  So making minor adjustments to keep that where we want it.  Otherwise everything is looking good. 

A great big Happy Birthday to my lovely, smart, compassionate niece, Sophia who is turning 6 today!  When we were in Memphis over New Year's, Sophia and Ben would fight over who would get to help.  I just love this phase of so wanting to help and believe me, I work that angle right now as much as I possibly can.