[/caption]So today it feels like she is sort of holding steady, rather than the downward decline we were seeing earlier this week. Plus, she has moments where she is better able to speak and communicate. Still no answers and still hooked up to the over 24-hour (at this point) EEG. I think her sodium has been holding steady at 151, but I'll have to check on that.
Great big thanks for a wonderful lunch visit and delicious food from Jennifer, which will probably last us all weekend long!! AND a big load of gratitude for all the yummy treats made by Brittany. AND big thanks to Lindsey for bringing me over some yummy Indian eggs, they hit the spot. You all are spoiling me!
I was thinking last night how perhaps instead of worrying about Ellie and trying to figure all this out, I could focus on Ellie laughing at jokes or getting the giggles for no apparent reason. Because focusing on her getting worse or trying to figure this all out, wondering if she will always be this way does not in any way feel good. I keep recalling how the Sunday before last when all the weird symptoms started (particularly leaning to the left) Ellie kept saying to me, "But I am getting better mom!" whenever I would start telling someone how she was not doing well. In her world, she was in no way getting "worse". That's the world where I wanna live.
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