Friday, February 26, 2010

Not quite so sleepy or perky

The MRI from yesterday looked good, no changes.  And her heart rate has been between the 70s and 80s (80-120 is normal).  Because Ellie was running a slight fever, Dr. Iskandar was concerned that perhaps Ellie was fighting an infection.  All of her tests checking for that have come back negative, however.   She is not running a fever now.  Apparently running a fever can be a reaction to changes in the brain.  And all of the sudden water dropping (diabetes insipidus) can also be a reaction to blood clots forming and being reabsorbed.   One of the endocriniolgists (Dr. Reim) said that it is a bit unusual for someone to have both cerebral salt wasting (dropping salt) and diabetes insipidus at the same time.  Typically when someone has diabetes insipidus, their salt goes way up as the water in their body goes down.  For Ellie, however, when her water goes down, her salt also goes down.  Fortunately, we are keeping a close eye on it and both are pretty easy to treat.  Although because she keeps changing what she is doing (dropping more water) it is a bit challenging to keep track of right now.  She is not quite back to herself as far as being jilled, just mostly lying in bed staring or sleeping.  That's the latest. 

Have I mentioned what a superb endocrine team we have?  I think I mentioned how one of the endocrinologists (Dr. Reim) said they would be discussing Ellie at their holiday party.  The whole team is just so informed and invested in her, it's impressive.  Whichever endocrinologist walks into our room, I know that they will already be up to speed.  Very greatful to have them on our team.

2 comments:

  1. LOVE LOVE LOVE that Endocrine team! Debi, you and Thom are phenomenal human beings, amazing parents, overall fantabulous...Kirk, the kids and I were coming up with words for Ellie...our best...crazy + happy = crappy!! Ha ha, we had a good laugh about it!

    Love you all
    The Memphis crew

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  2. Love the words you are coming up with, although you may not want to share them at school. Ellie's teacher said that one day in class, she suddenly shouted out, "Hey that is SUCKY!" And her teacher said, "EXCUSE ME??? WHAT DID YOU JUST SAY??" And Ellie said, "Sucky, so and lucky make sucky." I told her teacher that at least she hadn't combined "fire + truck" like she used to do on our walks...

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