My Pooper Trooper

I would be remiss if I didn't give a huge shout out to my fantastically amazing husband.  I am in awe of all that he does on a daily basis without complaint (typically).  He is another one of my heroes.  Every evening he stays up until 11pm to give Ellie her last dosage of medicines for the day.  Every day he sets out in small containers all the medicines she will be ingesting for that day.  So that I don't have to even think about it but can just grab it and go give it to her.  When hospital or medical personnel ask me what she is taking, I feel like a real dum dum because I can only guess.  I refer them to Thom.  And now that Ellie is back in pull-ups almost every day he wakes up and changes her and her sheets and her outfit because typically she goes right through everything.  He is a pooper trooper.  I love that when we have a mess to clean up, whatever that may mean in any given moment, we are able to jump in and do it together.  We have developed a synergy that just flows and makes it easy, often times not needing words, but getting it done.  I love that he is my best friend and will listen when I cry.  He knows how to hug.  I love watching him with Ellie and how gentle and kind he is and how excited he became when Ellie gave him a huge smile upon his return home from work on Wednesday.  I love how committed he is to us as a family, that he loves spending the evening watching a movie and eating pizza.  I love that we have the same quirky sense of humor.  I do not know how I would manage this journey without him.

Ellie has had another amazing day of being more alert and awake than she was earlier this week.  Thanks to Ms Zwart for once again reading to Ellie.