[/caption]This afternoon, Ellie was laying in bed just sort of smiling to herself. I asked her what she was thinking about, to which she responded that she was thinking of all the wonderful people in her life. I wanted to be a part of that so I asked her who she was thinking of. She said, "Well, like you and Daddy."
Our endocrinologist (Dr. Bekx) came in this afternoon saying she felt as if we were moving in the right direction with the cerebral salt wasting/diabetes insipidus. We have switched from the vasopressin drip to giving her a medication through her g-tube (one step closer to moving off the PICU to the other side of the 4th floor). She continues to have lots of ups and downs throughout the day with both her sodium and diabetes insipidus. Dr. Bekx told us that it can take anywhere from 2-4 weeks for everything to sort of settle in the brain after surgery. I think when she got to the 3 weeks, I sort of blacked out for a minute thinking of being here for another 3 weeks (today would be week 1 after her last brain surgery.)
Yesterday, Esther came to visit bearing all the crayons both she and her sister could rustle up around their homes. After she left, I imagined all of their children searching desperately for even a small crayon with which to do their work. Felt a little bad imagining that. Ellie reminisced following her visit how much she loves Esther's visits and how she even loves Esther's name.
A great big thanks to Karly for dropping in yesterday with lots of stuff for the silly garden PLUS book gifts for both of my children. Ellie's wonderful teachers from last year, Ms. Zwart and Ms. Mack came to visit bearing more gifts (bears) and chocolates. And once again we had an absolutely marvelous visit with the 2 of them, where the entire time, Ellie felt included in what was happening. Once again, I have to give a shout out to Brittany for her visits both yesterday and today.
Yeah, honey, another 3 weeks. Ugh.
ReplyDeleteI'll be, of course, intending for the lower end of the range the dr mentioned.
It sounds like there are lots of wonderful people in your lives!...with all these shout outs. :-)
Maybe you have one week in and only one to go!
ReplyDeleteThese wonderful people do sound wonderful!
Honestly, when I asked the question, I was awaiting a list of all the wonderful people I've been mentioning in the blog. I was shocked when she chose Thom & I.
ReplyDelete