[/caption]So everything checked out at the hospital yesterday. It looks like her shunt is still functioning. (With all the scar tissue in there, Dr. Iskandar [neurosurgeon extraordinaire] said the shunts are still really important to her functioning). She was up all day yesterday only sleeping for about 5 hours last night. Contrast that with this week when she was sleeping 16-20 hours a day. She is still having a great deal of difficulty with balance/strength. When Ellie started wailing from a fall earlier today, I raced upstairs to assist. Because when Ellie falls, she falls completely totally down usually face forward and cannot extract herself from that position. I don't think Thom and Ben have seen me move that fast in a looong time. This morning she also had lots of shaking of her arms, legs, hands. Not sure if it was a seizure or what. Fortunately, it has subsided now.
A few days ago, our neighbor, Chris saw me across the street and she shouted, "WOW, you are SO pregnant!!!" We tit tatted (talk + chit chatted) for a minute. Chris told me that she was reading an Eckhart Tolle book. His big message, from my understanding, is embracing and living in the NOW moment. Chris said as she read the book she thought of how Ellie already knows and is living everything in his book. And I had to agree wholeheartedly. Chris wondered at how easy it would be for Ellie to feel discouraged, depressed, angry, frustrated having so many surgeries, hospital stays, and challenges moving around now. Instead, when Chris comes to visit, Ellie spends the whole time talking about how jilled (joy + filled) she feels. How fortunate am I to have a daughter that spreads that message and a neighbor who notices?
No comments:
Post a Comment
Note: Only a member of this blog may post a comment.