Sunday, April 26, 2009

Living like a STAR

[caption id="attachment_924" align="alignleft" width="328" caption="Jenny and a much younger Bella Rose."]Jenny and a much younger Bella Rose.[/caption]

Recently, Ben, Ellie and I daytripped to Chicago.  When we arrived for our visit with the Behms (see "Jenny, Jenny" blog), both Bella (8) and Max (5) had friends over.  One of Bella's friends, Megan, tried extremely hard to include Ellie in the activities at hand.   When Ellie would do her normal 'routine', Bella's other friend would roll her eyes.  (Which Bella refused to acknowledge, and I appreciated her for that.)  The girls did not quite know what to make of Ellie, she was unlike anyone they had encountered before.  Fortunately, Ellie did not notice at all.  As is what typically happens with Ellie,  she continued on her merry way.  I however, was feeling slightly hurt on her behalf.  Who was this kid to judge my Ellie?  

I guess I have become accustomed to the reactions Ellie's classmates and teachers have towards her.   Last Friday night, we all went out to eat at the delicious Roman Candle restaurant.   When Ben & I went outside after dinner, a boy and his brother were outside their apartment.  One of the boys came up and asked where Ellie was.  Not "hi" or "oh, you must be Ellie's mom and brother", but looking around in search of Ellie, as if Ben and I were in fact only signs that Ellie was somewhere nearby, like big arrows pointing in her direction. 

[caption id="attachment_896" align="alignright" width="300" caption="Ellie plays at the big dino party..."]Ellie plays at the big dino party...[/caption]

When we go to one of our favorite neighborhood spots, Lazy Jane's, the manager always asks where Ellie is if she is not in attendance.  Recently when we were at another favored spot, Willy Street Co-op, one of our checkers, Anna said, "Oh, that is Ellie, I've heard so much about her from Kelly."  It makes me feel like Ellie is a local celebrity, without the paparazzi, quite an enjoyable experience. 

[caption id="attachment_863" align="alignright" width="300" caption="Giggles"]Giggles[/caption]

A few weeks ago, Ellie came home from school telling me one of the teachers did not want her to make up words.  For those of you who are not aware, Ellie likes to combine two or more words to create new words.  Ellie and I discussed how not everyone likes to make up words, sometimes people don't understand what she is trying to say or they don't want to play that game.  When I told Ellie's special education teacher, she became upset and confused.  She could not imagine who would have said such a thing.  She tracked down the possible perpetrator and the principal spoke with this person telling him/her that this was not acceptable.   Ms. Zwart was quite certain that Ellie will not be treated so "rudely" in the future.  I was completely floored at the way everyone involved was so wanting to make Ellie's experience at school an enjoyable one, one where she feels

[caption id="attachment_869" align="alignleft" width="300" caption="Happy Ellie."]Happy Ellie.[/caption]

free to blossom.  I mean I asked the question because I was surprised when Ellie told me that someone had said that to her, I couldn't image who she interacts with at school that would say something like that.  I wanted more information so that I could gear the conversation properly (i.e. was she making up words when she was supposed to be reading.)  The whole scenario left me with the feeling of Ellie being not only adored at school but also protected.  It left Thom feeling like he did NOT want to get on the wrong side of anyone working at the school.     

That is what I have been fortunate enough to experience for the most part this year, that kind of love and appreciation and total acceptance of Ellie.  So being around the eye rolling feels completely foreign.  How remarkable that Ellie's teachers and classmates and really our entire neighborhood has made me feel so sheltered and comfortable with the remarkable child she is.  I am left with feeling ever so greatful to  Bella's eye rolling friend who made me keenly aware of the circle of  love we are so very fortunate to reside in.

Saturday, April 18, 2009

The breaking point

[caption id="attachment_522" align="alignleft" width="300" caption="Ellie not singing Danny sad song"]Ellie not singing Danny's sad song...[/caption]

Several years ago, whenever Ellie felt sad or uncomfortable, she would sing about her sadness to the tune of "Stranded at the Drive In" from the musical Grease.  The amount of her singing multiplied after a particularly challenging hospital stay, until Thom and I absolutely thought we would lose our minds.  When staff members at the hospital would hear her lamenting to the Grease tune, they would often stifle a laugh or at the very least grin.  But we were at our breaking point.  She would start in and we would protest, "No, don't do it, don't sing that song."  It seems ridiculous now that Thom and I were so impatient with the song.  But at the time it was not in the least bit amusing.

One day we were taking Ellie to the hospital for a seizure.  As we were riding in the car, baby Ben was in the

[caption id="attachment_564" align="alignright" width="300" caption="Oh no, here comes that song again!"]Oh no, here comes that song again![/caption]

back seat oblivious, just having a grand time while Ellie's seizure continued to worsen.  The radio was on and I suddenly became furious that I didn't like the radio stations offered in Madison.  I could not understand why a town this size could not offer at least one radio station that I would care to listen to.   It was easier to be mad at the radio station than scared of a seizure.  At that moment it was the last straw.

When we were doing physical therapy this summer, I mentioned that Ellie often complains of her feet hurting.  The physical therapist told us that her feet were flat and turned in on the sides a bit and that orthotics could help the situation.  I just thought, NO!, I refuse to "fix" one more thing now.  In my mind, I threw in the towel, that was IT.  I had had IT.  Enough already.

It seems funny in hindsight to think that it wasn't the actual seizure that brought me to my knees, but the radio station.  It wasn't the surgery or aftermath, but the song.  My

[caption id="attachment_855" align="alignleft" width="300" caption="I am gonna blow!"]I am gonna blow![/caption]

friend Betsy, calls it a "smoke screen", it is sometimes easier to be upset about the radio station, which you can easily shut off than to be upset by a seemingly out of control seizure.  Whatever the term, it  just seems strange the straw that finally brings you down.  Pondering all this reminds me that when my children or others around me "lose it" over something seemingly insignificant, perhaps there is build up I am unaware of.  Even if it doesn't make sense to me, the amount of upset to the size of the event, maybe, just maybe it was the last straw.

Sunday, April 12, 2009

What a difference a year makes

[caption id="attachment_900" align="alignleft" width="300" caption="The birthday boy with fire..."]The birthday boy with fire...[/caption]

Last year on April 4, we spent the day at the hospital while Ellie had brain surgery.  This year on April 4, we had a Dinosaurrific party to celebrate Ben turning four.  What a difference a year can make!

Originally, Ben insisted that every guest wear a dinosaur costume.  His plan was to be T-Rex and chase the other dinosaurs around.  (If you are not aware, T-Rex, according to some accounts, may have been the fiercest, smartest, fastest dinosaur of all.)  However, upon discovering that we could purchase Dinosaur Party Hats, Ben amended his original plan and decided that every one could wear a party hat instead (and I sighed a huge sigh of relief as I have no idea how to make a T-Rex costume OR a long neck dinosaur costume).

[caption id="attachment_878" align="alignright" width="300" caption="Thom & Caitlyn dressed as dinosaurs..."]Thom & Caitlyn dressed as dinosaurs...[/caption]

Before the party, my friend Cynthia (see Cynthia Rocks) repeatedly asked me when our 4-year-old birthday party was going to end.  She felt it a highly dangerous maneuver to have a bunch of 4-year-olds over and not give a time when I would like them all to leave.  She told me, "Four-year-old parties can be INTENSE."  I told her that funnily enough, we had never ever had a problem with guests staying too long, typically there had been so much screaming, that our guests make excuses and rush out the door as quickly as they can, with us yelling after them, "But we haven't cut the cake yet..."

We had planned to do dinosaur crafts at the party.   I informed each guest that they had best make a good one, because that was their party favor also.  Weeks prior to the party, I collected recycled materials--empty toilet paper rolls, egg

[caption id="attachment_886" align="alignleft" width="300" caption="Playing in Ben's room."]Playing in Ben's room.[/caption]

cartons, fruit containers, water bottles--to be utilized for dinosaur parts.  While we were sitting creating, I suddenly had a flashback to my niece, Bella's, 4th (?) birthday party.  Susan and Ghany really outdid themselves that year, and there was a pony ride and those blow up jumping things, I think perhaps a petting zoo too.  Well, it just so happened that one of the guests at our party, Esther, was also at the Zafer party.  I imagined Esther talking to Susan on the phone and saying, "Yeah, we made crafts out of their trash!!"

Here is what I enjoyed most about each of our guests:

Baby Juna & Lindsey--These are our neighbors from across the street and they meant to just pop over for a few minutes, but

[caption id="attachment_898" align="alignright" width="300" caption="Lindsey and Baby Juna"]Lindsey and Baby Juna[/caption]

ended up staying much longer because they were having such a fabu time.  Baby Juna is adorable, she is so comfortable in walking around and exploring on her own.  I like how even when Ben tries to hug and kiss Juna, Lindsey doesn't get uptight about it.   She has told me that Juna is so used to kids Ben's age that she is not put off by all the hugs and snuggles.  The card that they gave us had a coupon for a play date that I am sure we will cash in extremely soon.

Esther & Jonathon--I loved having Esther at our party because she was one of my sister's closest friends when she lived in Memphis.  Recently she & her husband Dave traveled to New York and went to the movie set Kip was working on at the time.  So, having Esther at our party was sort of like having my siblings & mom there because Esther knows everyone, particularly my

[caption id="attachment_892" align="alignleft" width="300" caption="The "J"s of our party--Jonathon & Juna"]The "J"s of our party--Jonathon & Juna[/caption]

sister, well.  When I requested that no one bring gifts, Esther & Jonathon showed up with a huge Frog balloon (they couldn't find a dinosaur one).  That's Esther for you, showing up on time and with just the right thing.  Every time we see Esther, Ellie says, "I am so glad that Esther lives in Madison (really Middleton) now instead of Memphis so we can see her more often."  Esther is one of those people who truly appreciates and loves Ellie.  Often she will say, "You don't know how great you have it, do you?"  Meaning how great it is to have a daughter like Ellie, and every time it reminds me to focus on those qualities that I love about Ellie because I am so fortunate to have her as my daughter.  But, I digress.  When Jonathon was ready to leave, Ben grabbed his face and gave him not one but two big smooches, right on the mouth, before Jonathon could move his face.   He was shocked to say the least.

[caption id="attachment_884" align="alignright" width="300" caption="Max crawls on Wendy while Ben thinks about juice to drink next..."]Max crawls on Wendy while Ben thinks about what to eat next...[/caption]

Wendy & Max--I appreciated that Wendy brought me her hand-me-down clothes.  Yeah, free beautiful clothes, who doesn't like that? (Ellie would say, "Oscar the Grouch wouldn't like that, he would want old rotten dirty clothes").  Ben adores "baby" Max.  At one point when they were building a train track together, Max knocked the train track over.  Thom told me that Ben, instead of lashing out at Max physically, as he might have in the past, allowed himself to be angry and NOT hurt others.  Oh, was I ever proud of how far he has come.  Wendy brought bone shaped sugar cookies and they were the hit of the party, even more so than the volcano cake.

[caption id="attachment_882" align="alignleft" width="300" caption="The birthday table, Cynthia sits next to Ellie. "]The birthday table, Cynthia sits next to Ellie.  [/caption]

Cynthia & Mark & Caitlyn--Oh boy do I love this family.  Caitlyn dressed for awhile in her Triceratops costume.  Cynthia appreciated all of my humor, and who doesn't enjoy being appreciated??  Caitlyn arrived wearing dinosaur socks.  I immediately thought, "I have GOT to get some of those for Ben" when Caitlyn walked over and handed Ben his very own pair of dino socks, which he hasn't wanted to take off since receiving them.  Perfection.  Cynthia had an inspiration to make Chex Mix and yum yum, am I ever glad that she went with that intuition.

Jennifer & baby Alex--I was truly amazed at baby Alex.  At 6 months old, he is the laid backest baby I have ever had the

[caption id="attachment_897" align="alignright" width="300" caption="Baby Alex plays contentedly amongst all the chaos..."]Baby Alex plays contentedly amongst all the chaos...[/caption]

pleasure to meet.  He laid on the floor and played with whatever he could find.  Other babies and kids would crawl over him, grab his toy, and on he would lay contentedly.  He was not at all overwhelmed or startled by all the immense noise and activity around him.  WOW!

We have studied hosts that we find exceptional to ascertain what goes into being a marvelous host.  What we discovered is that the ones that excel in our minds are the ones who are truly enjoying their guests and themselves.  So that is what we set out to do, truly enjoy the company.  I appreciate that Thom was my co-host in this event, because I cannot imagine having the courage to do a party without him.  I love that when we work together (usually) it is so easy, we just each pick up where the other left off.  He cut the cake (and the The volcano birthday cake with dinosaur candles (and a little hand trying to grab the cake and candles..)cheese--ha!) and I passed it out.  (No, not I passed out, I passed the cake out, silly).  I appreciated that when we requested that our guests bring a dish to share instead of a gift, everyone acquiesced or brought something creative like socks or a balloon or a coupon for a playdate.  It was a wonderful party, and Ben as a T-Rex.infinitely more fun than a day of brain surgery.   Ben is already beginning to plan for next year or at least creating the cake for next year...

Sunday, April 5, 2009

Birthin them babies

OK, so I know that a lot of you have already heard this story numerous times.  So skip it if you want.  I won't know.  Go ahead.  Go read your other e-mails and blogs...If you are going to stay, I recommend getting a cup of coffee or tea because this is going to take awhile, this is my longest blog to date.  I'll meet you back here.   I must warn you that there are some extremely adorable baby pictures, so "watch out" as Ellie likes to say...

Angels woke me up the night Ellie was born to let me know that she was about to arrive (see Angels Angels Everywhere for a cool tie in).  I was asleep in one of our living room chairs when I was awakened by the absolute knowing that birth was about to begin.  As I arose from the chair, I thought how crazy that was, because there were no obvious signs that that was the case.  I went into the bedroom and lay down when suddenly my water broke.   From all the literature I had read, we had loads of time before having to arrive at the hospital, so I took my time taking a shower, blow drying my hair, preparing myself.  I was still feeling good, just occasionally a slight contraction that would slow me down.  Thom began timing my contractions and he realized that we needed to be at the hospital five minutes ago.  Weird.  I was still feeling like taking my time. 

When we arrived at the hospital, the contractions became more serious.  Things suddenly did not seem as funny to me anymore.  At this point the contractions stopped me in my tracks. 

It must have been a busy night at the hospital, because we hardly saw a nurse or doctor or resident the entire time.  Which was actually fine because when no one was checking in on us, I felt as if my body was doing what it was meant to do.  The checking in actually felt as if it slowed me down, interrupted me.  I imagined each contraction as a wave that I would ride, it would come in and peak, then it would retreat.  It felt sacred with just Thom and I together birthing this baby. 

When I felt the urge to push, I was still in the whirlpool bathtub that was a part of our birthing suite.  I told Thom the baby was coming.  He misunderstood and encouraged me, saying that was something good to focus on, that an actual baby would come out of all of this.  Then when a resident came in to check on me, she panicked, because she could feel the baby's head crowning.  This baby was coming out NOW. 

Suddenly, our birth room was filled with nurses, residents, doctors, interns, possibly a fix-it person and an auto mechanic.  I am not sure, there were just a whole heck of a lot of people there.  Anyway, they got me out of the bathtub and onto the bed and told me NOT to push because the doctor had not arrived.  I adored our OB/GYN, Dr. Thorpe.  I did a lot of research on my own and every appointment I had we would discuss what I had read.  The other doctors in her practice I did not enjoy as much, they were older male doctors who did not seem to hear what I had to say as legitimate.  Definately NOT who I wanted to deliver my baby.  So when Dr. Thorpe came in to check on us at one point during labor, I told her that I wanted her to deliver our baby and she actually left surgery to come deliver our baby girl!  Well, when our room was filled up with people, telling me NOT to push, that just made no sense whatsoever.  It was like telling

everyone in that crowded room not to breathe.  Or not to crowd the room.  It just didn't make sense.  And one of the many people in the room requested that I not be so loud.  (To which Thom responded by whispering that I could be as loud as I wanted.)  The whole thing

[caption id="attachment_793" align="alignleft" width="300" caption="Hat girl chillin' out."]An early version of hat girl.[/caption]

took 9 hours from start to finish, extremely short, particularly for a first pregnancy. 

I think the thing that was the most challenging for us during our hospital stay was how one nurse would come and and tell us one thing and the next nurse would come in and tell us the exact opposite.  I think the dealbreaker for us was when we finally finally fell asleep our first night, the night nurse came in, turned on all the lights and asked me if I had urinated.  That part of it was so not relaxing to us that we left early. 

Later the hospital sent over a midwife to check in on us and when I complained that I was having trouble sleeping with Ellie so far from me, she suggested we co-sleep.  Probably the best piece of parenting advice I have ever gotten, after that we all slept better.  How wonderful it was to have her little body snuggled against mine each night.  There was even one night as a newborn that she actually pushed herself closer to me and began to nurse. 

When I got pregnant with Ben, we knew that we wanted to create a different birth experience.  The hospital birth had been fine and we were glad we had Ellie in the hospital with the doctor of our choice but we just wanted to try something new.  We wanted the second birth to be more about OUR family and about the sacredness that we had felt when we were alone in the hospital the first time. 

So I started researching Doulas and Midwives in Madison.  No one really excited me too much.  Well I really liked one midwife but a lot of other people did too, so she was completely booked when I estimated I would deliver.  Then Thom & I began discussing the possibility of having our baby at home unassisted--a do-it-yourself birth.  I do not believe that pregnancy is an illness.  Women were having babies long before hospitals were around. 

I read about how 1 family a day in Colorado was choosing to have a baby at home unassisted.  The more Thom & I discussed this option, the more we became excited about it.  We understood that a lot of people would be freaked out by our choice, so we tried to keep it on the down low.  However, this proved to be quite challenging particularly when the first thing someone asks is, "Where are you delivering?"  One homeschooling mom advised me not to tell anyone that I was planning on having the baby at home unassisted. How unfortunate that with all of the wonderful options available to us here in America, that we can not discuss our choices without fear.  My friend, Amy Riley is writing a book about women's birth experiences (www.expectthebestbook.wordpress.com) to provide a safe place to converse, and my birth story will be in the book when it comes out next fall. 

But back to the story...Ellie began chemotherapy during my second trimester and we were at the hospital a great deal, which only solidified our decision to have the baby at home.  I could not imagine leaving Ellie at home with someone else during that time.  She needed US and we needed to be near her too.  I continued to do research on the topic of birthing at home and decided that I would type all of the information I had compiled into an easy-to-read chart for Thom.  Maybe I'd even get it laminated. 

 It was Easter Sunday and I was way pregnant.  We were sitting at the table after brunch.  My sister was coming to visit the next week and she had said explicitly that she did not want to have anything to do with placentas.  I said that I thought it would be best to have the baby before Susan arrived and respect her request.  Suddenly I started feeling a bit gassy.  Thom noticed that the "gas pains" were coming at regular intervals, sort of like contractions.  

Well, I did not have my hand dandy chart ready yet, so this could not be IT.  Well, chart or not, it was.  And away we went.  Thom was unwavering in his conviction that we could in fact do this at home, even when I had my moments of doubt.  He was so excited when labor began and I started to sing my "birthing song".  Ellie liked the birthing song at first and we explained that the baby was about to be born.  She kept needing Thom to help her with things, getting food for example, and when he would ask to go assist her it would seem like  good idea, until a contraction hit and then I thought it was the worst idea ever and I could not believe he had "left" me. 

Then I got the point where I hit, as they say in running, "the wall".  I just felt like I could not go on.  I had read about some women who realized that they were stalling themselves in labor.  I realized I was telling myself that there was no way I could do this, that I could not under any circumstances have a newborn when my oldest child was undergoing chemotherapy.  The deal was off. 

Once I began to tell myself that I could do this, things progressed very quickly.  Ellie came in as Ben was coming out and she decided that she would rather be in the bookshop reading books than watching her brother emerge.  We were convinced that Ben was going to be a girl, so after he was born, I was holding him, saying, " Ellenora", when I decided I should probably check.  And boy oh boy was he a boy!  (Genitals in newborns are enlarged, therefore gender is quite apparent). 

Then we had the dilemma of what to name this boy.  Ellie came in and suggested Daniel, because the book she had been reading had a Daniel in it.  We thought that might be confusing with her Uncle Daniel.  I was sitting thinking how much I like the name, Benjamin, when Ellie came in and said, "How about Benjamin?"  She often reads my mind like that. 

The next day, Thom took Ellie for her chemotherapy and went to the office to get a birth certificate for Ben (I'd called before hand to get a heads up on what was required.)  When Thom arrived at the office they told him that they could not issue a birth certificate without corroboration from a midwife or doctor.  Oh boy, that was a conundrum.  We called the midwife whom I'd liked so much and she came to our home, checked out Ben, weighed him and told us how much she admired our choice.  I recovered much more quickly from Ben's birth partly because I wasn't thinking that I would need to recover. 

The week after his birth, my sister arrived, and I was somehow able to keep the whole birth from her.  Thom picked her up from the airport and Susan ran into a friend at the Madison Airport she hadn't seen in years.  She was shocked at how insistent Thom, the typically laid back guy, was in getting her home.  I mean she just needed a minute to talk with her friend for crying out loud!  Thom knew that I was at home anxiously awaiting their arrival.  So when Susan arrived with her 2 girls, I was sitting in the chair holding Ben.  Susan stopped to talk with Ellie first and then walked in to our living room and did a double take.  She did not even see Ben at first so expecting to see me pregnant was she.  It was fun to surprise someone like Susan who is always (or almost, now that I've surprised her 3 times!) in the know.   

The thing I am proudest of in this story is how even though we had a lot of pressure to conform to having our baby the way other people felt was the safest,  we absolutely knew in our hearts that this was the best choice for our family.  We proceeded in creating the birth we wanted to create even in the midst of a lot of fear to the contrary.  I knew that times in the past that I was most frustrated with myself was when I did not listen to my intuition, my inner guidance, but instead succumbed to someone else's vision for my life.  It was truly an amazing experience, thank you for allowing me to share it with you.

Wednesday, April 1, 2009

No April Fool

[caption id="attachment_735" align="alignleft" width="300" caption="The fun of the rubber raft."]The fun of the rubber raft.[/caption]

Family legend has it that my Grandmother Wolf held her legs together on April 1st because she did not want to have an April Fool's baby.  Thus, because of my Grandmother's determination, my dad was born on April 2nd. 

My mom & dad divorced when I was maybe two (don't have any memories of it, so I do not have the exact date).  Thus, when we were growing up, we spent weekends visiting my dad.  Boy oh boy did we have a good time over there.  I know I've already mentioned the eating Kool-aid straight outta the can, but wait there is more.  My sister andI would create "everything cakes" where we would take whatever we found in the refrigerator (typically condiments) and stir it all together and bake it and wait anxiously to see what would happen.  Usually we didn't want to eat what came out of the oven, but the process itself was a good time.  

[caption id="attachment_736" align="alignright" width="196" caption="Susan makes rain."]Susan makes rain.[/caption]

Another favorite activity was to blow up this big rubber raft and make up dances or do those clapping rhymes (i.e. Ms. Mary Mack, Apples on a Stick, Sweet Sweet Baby) while bouncing on the sides.  Even though it was a big pain to blow up, my dad did it because of what a spectacular time we had. 

Sometimes we would listen to a song like "Don't it make my brown eyes blue" or "Da Do Run Run" over and over at full blast while we sang at top volume.  Man oh man did we ever sound good when that music was blaring.    

We would take driving trips to visit family in Colorado or Oklahoma or Texas (where my Dad grew up).  On one such trip, Susan & I got so loopy in the backseat that we decided to have sock puppet shows for the entertainment of the other cars on the road (aka "the audience").  We could not stop laughing when one of us said the phrase, "Golly gee".  That sort of goofiness only seems to happen when you are captured in a car for 10 or 12 hours, particularly if you are driving across Kansas. 

[caption id="attachment_723" align="alignleft" width="298" caption="His adorable daughters."]Dad's daughters...[/caption]

Before my sister's 40th birthday party in New York, I compiled a book of stories and quotes and poems from some of Susan's biggest fans.  When I asked my dad for a submission, he sent me 4 or 5 e-mails worth of stories.  It seemed that once he began reminiscing, he just could not stop.  Then he sent me a bunch of photos too.   Following is some of what he sent me...(I know, is it fair to make him write his own special birthday blog? And is it right for me to share these private thoughts?) I love these e-mails because the stories really capture how he feels about his daughter.









This is a memory I have of Susan shortly after she was born.  It was discovered that she had a hole in the back of her upper palate.  It was necessary to feed her milk with a pharmacy cup.  Her mom was very upset upon discovering this and Susan would gag when the milk would get into the hole.  So I took Susan and tried to give her milk with the small pharmacy cup.  She was so small and so hungry.  I remember how her thick black hair covered her head.  She was one hungry little daughter and would gulp the milk.  It would make her choke when the milk went down the wrong pipe as


[caption id="attachment_818" align="alignright" width="194" caption="Susan as a baby."]Susan as a baby.[/caption]

they say.  Necessity dictated that the process continue.  So I tried to feed her and get milk down to a smaller trickle so it would not choke her.  How I loved that little bundle.  I have said that I am hard pressed to realize that I am forty and yet my children now are approaching that age.  How much I have grown to love and appreciate Susan in those 40 years she has been on this earth.  PS We were fortunate that a famous plastic surgeon repaired her mouth.  Years ago Susan would not have been able to speak.  How fortunate we are that she could and rose to the lofty achievements that she did academically.  Love dad

And in another e-mail, he continued...





I still have the pharmacy cup that I used to feed Susan when she was a child.  I have hung on to it and keep it to remember those days.  I had to be sure that I could still find it.  With Linda's help I was able to remember which drawer it was in.  Think your idea  to get Susan a 40 birthday remembrance is great.  Seems like a lot of us dread a certain age.  I dreaded 40.  But after the birthday I was just glad to be here. Love dad






When Ellie was undergoing chemotherapy, my dad sent numerous poems that he created about Ellie and what she liked (see That's MY name too blog...)  Here's an example:






[caption id="attachment_431" align="alignright" width="300" caption="Ellie before her huggle snuggle shop there were bows. Many bows."]Ellie before her huggle snuggle shop there were bows. Many bows.[/caption]

Betsi owns a Snuggle Shop which gives her great joy

Her shop has a snuggle for a girl or a boy

The shop is ever open never closing its door

ready to give snuggles when needed - take one or more

 

Snuggles give lots of love and affection

They cure our blues and give us new direction

No wonder the snuggle shop is such a great deal

After getting free snuggles how much better we feel

 

Betsi thank you for having the Snuggle Shoppe

For it is a blessing which is very hard to top.

 



I read these poems to Ellie over and over again. 



[caption id="attachment_148" align="alignleft" width="300" caption="Ben & Granddad"]Ben & Granddad[/caption]

When my Dad comes to visit he will sit in Ellie's room and observe her while she plays, remembering all the things she is doing so that when he returns home he can fashion a poem for her.  Just so sweet to see how he is getting to know both Ellie and Ben. 

When I told my dad we were going to have Ben's birth at home, my dad was nervous at first.  But then I shared the information I had researched, he listened intently to what I had to say.  I so appreciated his willingness to fully listen and I think at one point he told me that I had really done my research.  I loved that he truly understood that I had not taking this decision lightly.



[caption id="attachment_734" align="alignright" width="300" caption="Still merry even after we rammed into his car."]Still merry even after we rammed into his car.[/caption]

One cold Christmas day, as Susan was pulling into my dad's driveway, she ran into his car.  As we went inside, we said, "Merry Christmas Dad, we just ran into your car."  First he inquired whether or not everyone was alright.  Then he calmly went outside to investigate.  Never for a moment did he became angry or even frustrated.  He told us how when he was a younger driver, the same thing had happened and his dad (I think) had never raised his voice.  In that instance he made it so perfectly clear that Susan and I were what was important to him.  He understood that the crash had been an accident, and he treated it as such, no lecture, no yelling, just understanding that accidents happen.  I want to be able to react to my children's mishaps with the same calm understanding that he did.  Thanks, Dad, for all the understanding, love, and fun you have brought to our lives over the years.  How fortunate we are to have you as our Dad.  Have a happy birthday!  Love, Debi